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A Guide to Selected National Genetic Voluntary Organizations [microform]
Bib ID 5463082
Format BookBook, MicroformMicroform, OnlineOnline
Author
National Center for Education in Maternal and Child Health, Washington, DC
 
Online Versions
Description [Washington, D.C.] : Distributed by ERIC Clearinghouse, 1985 
137 p. 
Summary

The directory lists approximately 120 mutual support groups concerned with the medical and psychological impacts of genetic disorders and birth defects on individuals and their families. The groups are dedicated to serving the ongoing emotional, practical, and financial needs of these populations. The entries are arranged alphabetically and include information on name of organization, address, phone number, executive director, contact person, chapters/satellites, purpose, and educational materials (publications, audiovisuals, newsletters). Among conditions represented are acoustic neuroma, Alzheimer's disease, arthritis, autism, cerebral palsy, cystic fibrosis, Down's syndrome, epilepsy, Friedreich's ataxia, hemophilia, Huntington's disease, hydrocephalus, leukemia, lupus, multiple sclerosis, Parkinson's disease, Prader-Willi syndrome, scoliosis, spina bifida, and Tourette syndrome. (CL)

Notes

Sponsoring Agency: Health Resources and Services Administration (DHHS/PHS), Rockville, MD. Office for Maternal and Child Health Services.

May also be available online. Address as at 14/8/18: https://eric.ed.gov/

Reproduction Microfiche. [Washington D.C.]: ERIC Clearinghouse microfiches : positive. 
Subjects Congenital Impairments.  |  Genetics.  |  Organizations (Groups)  |  Social Support Groups.
Form/genre Reference Materials, Directories/Catalogs.
Other authors/contributors National Center for Education in Maternal and Child Health, Washington, DC
Available From ERIC 
000 02258cam a22003132u 4500
001 5463082
005 20181012145455.0
007 he u||024||||
008 080220s1985    xxu ||| bc    ||| | eng d
035 |9(ericd)ED266563
037 |aED266563|bERIC
040 |aericd|beng|cericd|dMvI
091 |amfm
110 2 |aNational Center for Education in Maternal and Child Health, Washington, DC.
245 1 2 |aA Guide to Selected National Genetic Voluntary Organizations|h[microform].
260 |a[Washington, D.C.] :|bDistributed by ERIC Clearinghouse,|c1985.
300 |a137 p.
500 |aSponsoring Agency: Health Resources and Services Administration (DHHS/PHS), Rockville, MD. Office for Maternal and Child Health Services.|5ericd
520 |aThe directory lists approximately 120 mutual support groups concerned with the medical and psychological impacts of genetic disorders and birth defects on individuals and their families. The groups are dedicated to serving the ongoing emotional, practical, and financial needs of these populations. The entries are arranged alphabetically and include information on name of organization, address, phone number, executive director, contact person, chapters/satellites, purpose, and educational materials (publications, audiovisuals, newsletters). Among conditions represented are acoustic neuroma, Alzheimer's disease, arthritis, autism, cerebral palsy, cystic fibrosis, Down's syndrome, epilepsy, Friedreich's ataxia, hemophilia, Huntington's disease, hydrocephalus, leukemia, lupus, multiple sclerosis, Parkinson's disease, Prader-Willi syndrome, scoliosis, spina bifida, and Tourette syndrome. (CL)
530 |aMay also be available online. Address as at 14/8/18: |uhttps://eric.ed.gov/
533 |aMicrofiche.|b[Washington D.C.]:|cERIC Clearinghouse|emicrofiches : positive.
650 1 7 |aCongenital Impairments.|2ericd
650 1 7 |aGenetics.|2ericd
650 0 7 |aOrganizations (Groups)|2ericd
650 1 7 |aSocial Support Groups.|2ericd
655 7 |aReference Materials, Directories/Catalogs.|2ericd
710 2 |aNational Center for Education in Maternal and Child Health, Washington, DC.
856 4 1 |uhttps://eric.ed.gov/?id=ED266563
984 |aANL|cmc 2253 ED266563|d77000000272036
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