02258cam a22003132u 4500001000800000005001700008007001400025008004100039035002000080037001900100040002700119091000800146110008000154245007900234260006800313300001100381500014900392520090500541530008001446533008101526650003501607650002101642650003401663650003401697655005401731710008001785856003701865984004201902546308220181012145455.0he u||024||||080220s1985 xxu ||| bc ||| | eng d 9(ericd)ED266563 aED266563bERIC aericdbengcericddMvI amfm2 aNational Center for Education in Maternal and Child Health, Washington, DC.12aA Guide to Selected National Genetic Voluntary Organizationsh[microform]. a[Washington, D.C.] :bDistributed by ERIC Clearinghouse,c1985. a137 p. aSponsoring Agency: Health Resources and Services Administration (DHHS/PHS), Rockville, MD. Office for Maternal and Child Health Services.5ericd aThe directory lists approximately 120 mutual support groups concerned with the medical and psychological impacts of genetic disorders and birth defects on individuals and their families. The groups are dedicated to serving the ongoing emotional, practical, and financial needs of these populations. The entries are arranged alphabetically and include information on name of organization, address, phone number, executive director, contact person, chapters/satellites, purpose, and educational materials (publications, audiovisuals, newsletters). Among conditions represented are acoustic neuroma, Alzheimer's disease, arthritis, autism, cerebral palsy, cystic fibrosis, Down's syndrome, epilepsy, Friedreich's ataxia, hemophilia, Huntington's disease, hydrocephalus, leukemia, lupus, multiple sclerosis, Parkinson's disease, Prader-Willi syndrome, scoliosis, spina bifida, and Tourette syndrome. (CL) aMay also be available online. Address as at 14/8/18: uhttps://eric.ed.gov/ aMicrofiche.b[Washington D.C.]:cERIC Clearinghouseemicrofiches : positive.17aCongenital Impairments.2ericd17aGenetics.2ericd07aOrganizations (Groups)2ericd17aSocial Support Groups.2ericd 7aReference Materials, Directories/Catalogs.2ericd2 aNational Center for Education in Maternal and Child Health, Washington, DC.41uhttps://eric.ed.gov/?id=ED266563 aANLcmc 2253 ED266563d77000000272036