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A Guide to Selected National Genetic Voluntary Organizations [microform]
Bib ID 5463082
Format BookBook, MicroformMicroform, OnlineOnline
Author
National Center for Education in Maternal and Child Health, Washington, DC
 
Online Versions
Description [Washington, D.C.] : Distributed by ERIC Clearinghouse, 1985 
137 p. 
Summary

The directory lists approximately 120 mutual support groups concerned with the medical and psychological impacts of genetic disorders and birth defects on individuals and their families. The groups are dedicated to serving the ongoing emotional, practical, and financial needs of these populations. The entries are arranged alphabetically and include information on name of organization, address, phone number, executive director, contact person, chapters/satellites, purpose, and educational materials (publications, audiovisuals, newsletters). Among conditions represented are acoustic neuroma, Alzheimer's disease, arthritis, autism, cerebral palsy, cystic fibrosis, Down's syndrome, epilepsy, Friedreich's ataxia, hemophilia, Huntington's disease, hydrocephalus, leukemia, lupus, multiple sclerosis, Parkinson's disease, Prader-Willi syndrome, scoliosis, spina bifida, and Tourette syndrome. (CL)

Notes

Sponsoring Agency: Health Resources and Services Administration (DHHS/PHS), Rockville, MD. Office for Maternal and Child Health Services.

May also be available online. Address as at 14/8/18: https://eric.ed.gov/

Reproduction Microfiche. [Washington D.C.]: ERIC Clearinghouse microfiches : positive. 
Subjects Congenital Impairments.  |  Genetics.  |  Organizations (Groups)  |  Social Support Groups.
Form/genre Reference Materials, Directories/Catalogs.
Other authors/contributors National Center for Education in Maternal and Child Health, Washington, DC
Available From ERIC 

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Aboriginal, Torres Strait Islander and other First Nations people are advised that this catalogue contains names, recordings and images of deceased people and other content that may be culturally sensitive. Please also be aware that you may see certain words or descriptions in this catalogue which reflect the author’s attitude or that of the period in which the item was created and may now be considered offensive.