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Cooley's Anemia [microform] : A Psychosocial Directory
Bib ID 5493205
Format BookBook, MicroformMicroform, OnlineOnline
Author
National Center for Education in Maternal and Child Health, Washington, DC
 
Online Versions
Description [Washington, D.C.] : Distributed by ERIC Clearinghouse, 1986 
61 p. 
Summary

The directory is intended to aid patients and their families who are coping with the genetic disorder of Cooley's anemia. A brief review of the disease covers background, genetics, symptoms, effect on the patient, treatment, and current research. The next section looks at psychosocial needs at various times (time of diagnosis, infancy and toddler years, preschool years, school years, adolescence, and young adulthood). The next section describes resources in the following areas: medical care and management, genetic services, self-help and advocacy groups, education, employment, financial assistance, medical assistance, transportation, civil rights/legal assistance, tax benefits, and housing. Over half the document consists of appendixes including listings of: state genetic service coordinators, selected self-help and advocacy groups, state directors of maternal and child health and crippled children's services, state protection and advocacy programs. Also included are a selected reading list of 14 items and a glossary of 15 related terms. (DB)

Notes

Availability: National Center for Education in Maternal and Child Health, 38th and R Streets, N.W., Washington, DC 20057.

Sponsoring Agency: Health Resources and Services Administration (DHHS/PHS), Rockville, MD. Office for Maternal and Child Health Services.

May also be available online. Address as at 14/8/18: https://eric.ed.gov/

Reproduction Microfiche. [Washington D.C.]: ERIC Clearinghouse microfiches : positive. 
Subjects Advocacy.  |  Anemia.  |  Civil Rights.  |  Congenital Impairments.  |  Diseases.  |  Educational Needs.  |  Employment.  |  Financial Support.  |  Genetics.  |  Housing.  |  Medical Services.  |  Needs.  |  Resources.  |  Special Health Problems.  |  Taxes.  |  Transportation.  |  Cooleys Anemia
Form/genre Guides, Non-Classroom.  |  Reference Materials, Directories/Catalogs.
Other authors/contributors National Center for Education in Maternal and Child Health, Washington, DC
Available From ERIC 

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mc 2253 ED296494 Main Reading Room - Newspapers and Family History
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