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A Guide to Selected National Genetic Voluntary Organizations [microform]
Bib ID 5505699
Format BookBook, MicroformMicroform, OnlineOnline
Author
National Center for Education in Maternal and Child Health, Washington, DC
 
Online Versions
Description [Washington, D.C.] : Distributed by ERIC Clearinghouse, 1989 
192 p. 
Summary

The directory lists mutual support groups concerned with the medical and psychosocial impacts of genetic disorders and birth defects on affected individuals and families. Each organization included is dedicated to the ongoing emotional, practical, and financial needs of these populations. Entries are categorized by disorder, including: general, auditory, cancer, cardiovascular, chromosomal, connective tissue, craniofacial, developmental, gastrointestinal, hematologic, immunologic, kidney, mental, metabolic, muskoskeletal, neurologic, neuromuscular, short stature, skin, and visual disorders. Listings are also indexed by subject and organization name. Information provided in the organization listings includes the names of the executive director and a contact person, the chapters or satellites, if any, the purpose, publications, available audiovisuals, and newsletter title and/or frequency. (MSE)

Notes

Sponsoring Agency: Health Resources and Services Administration (DHHS/PHS), Rockville, MD. Office for Maternal and Child Health Services.

Contract Number: MCJ-117006-01-0.

May also be available online. Address as at 14/8/18: https://eric.ed.gov/

Reproduction Microfiche. [Washington D.C.]: ERIC Clearinghouse microfiches : positive. 
Subjects Congenital Impairments.  |  Disabilities.  |  Genetics.  |  Information Sources.  |  Organizations (Groups)  |  Philanthropic Foundations.  |  Social Support Groups.  |  Voluntary Agencies.
Form/genre Reference Materials, Directories/Catalogs.  |  Books.
Other authors/contributors National Center for Education in Maternal and Child Health, Washington, DC
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Aboriginal and Torres Strait Islander Flags
Aboriginal, Torres Strait Islander and other First Nations people are advised that this catalogue contains names, recordings and images of deceased people and other content that may be culturally sensitive. Please also be aware that you may see certain words or descriptions in this catalogue which reflect the author’s attitude or that of the period in which the item was created and may now be considered offensive.